As a digital health company, the privacy and security of our patient’s health information is our top priority. Recently, BreatheSuite's own Chief Scientific Officer, Dr. Meshari F. Alwashmi had the opportunity to participate in the Modern Consent Design Jam, sponsored by Memorial University and focused on "Modernizing Health Care Consent Models to Unlock Health Innovation". The event was the brainchild of Angela Power, Director of Data Ethics & Privacy Newfoundland & Labrador Centre for Health Information.
This day of brainstorming featured a discussion between several professionals from the digital health field. These panelists included stakeholders from Memorial University, Eastern Health and Hacking Health, a Canadian non-profit that partners tech innovators with healthcare experts.
"The Design Jam assessed where and how consent could be embedded in the health system and beyond to ensure we maximize consent opportunities and patient choice." - Dr. Holly Etchegary, Assistant Professor Faculty of Medicine Memorial University and Angela Power, Director, Data Ethics & Privacy Newfoundland & Labrador Centre for Health Information and Facilitator of the Jam.
Topics of discussion included the evolving health sector, technological integration, key areas of health-tech research and the ever-present topic of patient information security. Particular focus was placed on the contemporary patient experience and ways to improve it.
Throughout the discussion, stakeholders were divided into separate groups, each with a different digital healthcare theme to keep in mind. These included:
As the session progressed, panelists were asked to address the challenges with obtaining and managing patient consent and privacy for healthcare software and applications. The results of these talks were pooled to identify key features and implications of modern patient consent models. Findings from the day included the need for transparency, clear patient literature and patient control.
To read more about the results of the Design Jam, be sure to check out the article Your Data Your Choice.